As an Ontarian medical student in the 1970s, Dr Burge wanted to travel to a coast and practise medicine in a distant place. He became aware of Baie Verte in Newfoundland, the community’s medical services (hospital and staff residences) sponsored by the United Church. Dr Burge remembers the hospital structure situated on the top of a hill; to get into the actual community from the highway, one had to pass the foot of the hill with the hospital above.
Part of the experience in Baie Verte was the visiting of outport communities. On these visits Dr Burge sat as passenger, listening to his physician-mentor discuss the problems facing the community at the end of the road. Unemployment statistics, financial setbacks, the exigencies of the provincial government: all part of the conversation. Dr Burge’s mentors contextualized the health of whole communities in drives that were all descents from the main road.
One such community was La Scie. A local woman served as clinic secretary; over lunch she cooked the medical student and the doctor rabbit stew. At the end of the winter’s day, already dark, the secretary reserved the last appointment for a home visit. The medical student and the doctor entered a home with no central heating or indoor plumbing. A wood stove in the main room threw heat at a family gathered around a colour television. In an upstairs bed, under many blankets, an emaciated grandmother slept by a honey bucket and a magazine for wiping.
The family did what it could; no one conceived of another arrangement. The doctor prescribed treatments and the visitors left a house that was perched on rocks where broken docks and dories had colloquy with the sea. Up the road to Baie Verte, the doctor told the medical student that this is the place the patients live, that this is the place the doctors practise, and all you can do is to work with what you have.
The medical student entered into practice and became interested in palliative care. He returned to school and did further training during the dawn of pain and symptom management, a new gospel that took what people had (pain, for example) and offered solutions. During his early work as a palliative care doctor, Dr Burge encountered a woman with bowel cancer. The spread of the cancer caused her considerable pain. Ascitic, jaundiced, cachectic, her body retreating both from and into a massive, broadening belly, she refused analgesia and vexed the treating team and the palliative consult team. She became a code to crack: numerous visits to inquire as to why she “wouldn’t let us help” with her pain. In frustration, she finally told Dr Burge that she was a Polish Jew, a concentration camp survivor, and that the pain she felt at present was nothing to what she had experienced before; and that the current pain was more of a clearing the way for her into the next life. She died several days later.
Dr Burge practised palliative medicine for a time before returning to regular practice. He now enjoys the “longitudinal” experience of palliative care: being there for a patient who is part of a shared patient-doctor history of years. His consultancy involvement in dying patients’ lives was brief and intense, but palliating a long-standing patient has an emotional power and satisfaction that reinvests meaning into his nonpalliative relationships with regular patients.
Footnotes
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