Research ArticlePractice
Primary care of adults with intellectual and developmental disabilities
2018 Canadian consensus guidelines
William F. Sullivan, Heidi Diepstra, John Heng, Shara Ally, Elspeth Bradley, Ian Casson, Brian Hennen, Maureen Kelly, Marika Korossy, Karen McNeil, Dara Abells, Khush Amaria, Kerry Boyd, Meg Gemmill, Elizabeth Grier, Natalie Kennie-Kaulbach, Mackenzie Ketchell, Jessica Ladouceur, Amanda Lepp, Yona Lunsky, Shirley McMillan, Ullanda Niel, Samantha Sacks, Sarah Shea, Katherine Stringer, Kyle Sue and Sandra Witherbee
Canadian Family Physician April 2018; 64 (4) 254-279;
William F. Sullivan
Associate Professor in the Department of Family and Community Medicine at the University of Toronto in Ontario, a staff physician in Medical Services at Surrey Place Centre and the Family Practice Unit at St Michael’s Hospital, and Director of the Developmental Disabilities Primary Care Program at Surrey Place Centre.
MD CCFP(COE) FCFP PhDHeidi Diepstra
Research associate at Surrey Place Centre.
MA PhDJohn Heng
Assistant Professor in the Department of Philosophy and the Department of Interdisciplinary Studies at King’s University College in London, Ont.
MAShara Ally
An advanced practice nurse at Surrey Place Centre, Adjunct Lecturer in the Lawrence S. Bloomberg Faculty of Nursing at the University of Toronto, and an MBA candidate.
RN MNElspeth Bradley
Associate Professor in the Department of Psychiatry at the University of Toronto and a consulting psychiatrist and psychotherapist in intellectual disabilities.
MB BS PhD FRCPC FRCPsychIan Casson
Associate Professor in the Department of Family Medicine at Queen’s University in Kingston, Ont.
MD MSc FCFPBrian Hennen
Professor Emeritus at Western University in London and Dalhousie University in Halifax, NS.
MD MA FCFP FRCGPMaureen Kelly
Retired nurse from Toronto.
MPAMarika Korossy
Retired librarian from Surrey Place Centre in Toronto.
Karen McNeil
Assistant Professor in the Department of Family Medicine at Dalhousie University.
MD CCFP FCFPDara Abells
Family physician at Forest Hill Family Health Centre in Toronto and the Integrated Services for Autism and Neurodevelopmental Disorders, and Lecturer in the Department of Family and Community Medicine at the University of Toronto.
MD CCFP MScCHKhush Amaria
Clinical and health psychologist and team lead for the Good 2 Go Transition Program at the Hospital for Sick Children in Toronto.
PhD CPsychKerry Boyd
Associate Clinical Professor in the Department of Psychiatry and Behavioural Neurosciences at McMaster University in Hamilton, Ont, and Chief Clinical Officer for Bethesda Community Services in Thorold, Ont.
MD FRCPCMeg Gemmill
Assistant Professor in the Department of Family Medicine at Queen’s University.
MD CCFPElizabeth Grier
Assistant Professor in the Department of Family Medicine at Queen’s University.
MD CCFPNatalie Kennie-Kaulbach
University Teaching Fellow and a coordinator in the Skills Lab in the College of Pharmacy at Dalhousie University.
ACRP PharmD RPhMackenzie Ketchell
Behaviour analyst and Professor in the School of Social and Community Services at Humber Institute of Technology and Advanced Learning in Toronto.
MS BCBAJessica Ladouceur
Adjunct Professor in the Belleville Queen’s University Family Medicine Centre.
MD CCFPAmanda Lepp
Resident in the Discipline of Family Medicine at McMaster University.
MD PhDYona Lunsky
Senior Scientist at the Centre for Addiction and Mental Health in Toronto and Professor and Developmental Disability Lead at the University of Toronto.
PhD CPsychShirley McMillan
Clinical nurse specialist in the adult program at Surrey Place Centre.
RN MN CDDN PhDUllanda Niel
Family physician at the Scarborough Centre for Healthy Communities in Ontario.
MD CCFPSamantha Sacks
Clinical Faculty Lecturer in the Department of Family Medicine at McGill University in Montreal, Que, and a family physician at See Things My Way Centre for Innovation in Autism and Intellectual Disabilities.
MD CM CCFPSarah Shea
Professor in the Department of Pediatrics at Dalhousie University.
MD FRCPCKatherine Stringer
Associate Professor and Chair of Family Medicine at Memorial University of Newfoundland in St John’s.
MB ChB CCFP FCFPKyle Sue
Clinical Assistant Professor in the Discipline of Family Medicine at Memorial University of Newfoundland.
MD MHM CCFP(PC)Sandra Witherbee
Family practice nurse in the Dalhousie Family Medicine Clinic.
RN
Submit a Response to This Article
Jump to comment:
No eLetters have been published for this article.
In this issue
Canadian Family Physician
Vol. 64, Issue 4
1 Apr 2018
Primary care of adults with intellectual and developmental disabilities
William F. Sullivan, Heidi Diepstra, John Heng, Shara Ally, Elspeth Bradley, Ian Casson, Brian Hennen, Maureen Kelly, Marika Korossy, Karen McNeil, Dara Abells, Khush Amaria, Kerry Boyd, Meg Gemmill, Elizabeth Grier, Natalie Kennie-Kaulbach, Mackenzie Ketchell, Jessica Ladouceur, Amanda Lepp, Yona Lunsky, Shirley McMillan, Ullanda Niel, Samantha Sacks, Sarah Shea, Katherine Stringer, Kyle Sue, Sandra Witherbee
Canadian Family Physician Apr 2018, 64 (4) 254-279;
Primary care of adults with intellectual and developmental disabilities
William F. Sullivan, Heidi Diepstra, John Heng, Shara Ally, Elspeth Bradley, Ian Casson, Brian Hennen, Maureen Kelly, Marika Korossy, Karen McNeil, Dara Abells, Khush Amaria, Kerry Boyd, Meg Gemmill, Elizabeth Grier, Natalie Kennie-Kaulbach, Mackenzie Ketchell, Jessica Ladouceur, Amanda Lepp, Yona Lunsky, Shirley McMillan, Ullanda Niel, Samantha Sacks, Sarah Shea, Katherine Stringer, Kyle Sue, Sandra Witherbee
Canadian Family Physician Apr 2018, 64 (4) 254-279;
Jump to section
Related Articles
Cited By...
- Improving access to primary care and annual health checks for people who have a learning disability: a multistakeholder qualitative study
- Genetic diagnosis for adult patients at a genetic clinic
- Adults with intellectual disabilities and mental health disorders in primary care: a scoping review
- Health check guidelines and billing for family physicians caring for adults with intellectual and developmental disabilities: Incentives to improve care
- Caring for children with mental health or developmental and behavioural disorders: Perspectives of family health teams on roles and barriers to care
- Scoping review protocol documenting cancer outcomes and inequalities for adults living with intellectual and/or developmental disabilities
- Management of gastroesophageal reflux disease in pediatric patients with cerebral palsy
- Prise en charge du reflux gastro-{oelig}sophagien chez les enfants atteints de paralysie cerebrale
- Aging with intellectual and developmental disabilities: Family physicians can make a difference
- Prendre de lage avec une deficience intellectuelle et developpementale: Une periode depanouissement?
- Health Check tool: For comprehensive health assessment of adults with intellectual and developmental disabilities
- Improving the quality of primary care for adults with intellectual and developmental disabilities: Value of the periodic health examination
- Supporting adults with intellectual and developmental disabilities to cope and thrive through transitions to later-life phases
- Approach to providing care for aging adults with intellectual and developmental disabilities
- Improving care for adults with intellectual and developmental disabilities: Role of clerical staff
- Aging that includes an intellectual and developmental disability: A time to flourish?
- Teaching family medicine residents about care of adults with intellectual and developmental disabilities
- Promoting health care decision-making capabilities of adults with intellectual and developmental disabilities
- Comprehensive preventive care assessments for adults with intellectual and developmental disabilities: Part 2: 2003 to 2014
- Palliative care for patients with communication and cognitive difficulties
- Supporting adults with intellectual and developmental disabilities to participate in health care decision making
- A greater understanding
- Health checks for adults with intellectual and developmental disabilities in a family practice
- Approaches to primary care of adults with intellectual and developmental disabilities: Importance of frameworks for guidelines
- Comprehensive preventive care assessments for adults with intellectual and developmental disabilities: Part 1: How do we know if it is happening?
- Comment aborder les soins primares aux adultes ayant des deficiences intellectuelles et developpementales: Importance des cadres conceptuels pour elaborer des lignes directrices
- Exploring the prenatal experience of women with intellectual and developmental disabilities: In a southeastern Ontario family health team
- HELP for behaviours that challenge in adults with intellectual and developmental disabilities
- Improving transition to adulthood for adolescents with intellectual and developmental disabilities: Proactive developmental and systems perspective
- Une meilleure comprehension
- Circles of care for people with intellectual and developmental disabilities: Communication, collaboration, and coordination
- Consumer inclusion: Experience of patients with intellectual and developmental disabilities informs primary care
- Patient-centred primary care of adults with severe and profound intellectual and developmental disabilities: Patient-caregiver-physician relationship
- Managing complexity in care of patients with intellectual and developmental disabilities: Natural fit for the family physician as an expert generalist