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Research ArticleResearch

Do family health clinics provide primary-level palliative care in Ontario and the eastern regions of Quebec?

Bruno Gagnon, Sandy Buchman, Anum Irfan Khan, Marnie MacKinnon, Sara Urowitz, Tara Walton, Marie Immacula Fabienne Cléophat-Jolicoeur and José Pereira
Canadian Family Physician February 2019, 65 (2) 118-124;
Bruno Gagnon
Family physician, Associate Professor in the Department of Family Medicine and Emergency Medicine, and member of the Cancer Research Centre at Laval University in Quebec, as well as a palliative care consultant for the Centre intégré universitaire de santé et services sociaux de la Capitale-Nationale and at the CHU de Québec-Université Laval.
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  • For correspondence: gagnon.bruno@crchuq.ulaval.ca
Sandy Buchman
Family physician providing home-based palliative care in Toronto, Ont, is Associate Professor in the Division of Palliative Care in the Department of Family and Community Medicine at the University of Toronto, and is President-Elect of the Canadian Medical Association in Ottawa, Ont.
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Anum Irfan Khan
Doctoral candidate at the Institute of Health Policy, Management and Evaluation at the University of Toronto.
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Marnie MacKinnon
Director for the Prevention and Screening Policy Unit of Cancer Care Ontario.
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Sara Urowitz
Program Manager for the Palliative Care Program at Cancer Care Ontario.
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Tara Walton
Policy Research Analyst for the Palliative Care Program at Cancer Care Ontario.
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Marie Immacula Fabienne Cléophat-Jolicoeur
Analyst in public health at the Institut de la statistique du Québec.
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José Pereira
Director of Research at the College of Family Physicians of Canada in Mississauga, Ont, Professor in the Department of Family Medicine at the University of Ottawa, Professor in the Department of Family Medicine at Queen’s University in Kingston, Ont, and Chief Scientific Officer at Pallium Canada in Ottawa.
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    Table 1.

    Number of responding primary care clinics and response rates

    PROVINCETYPE OF PRIMARY CARE PRACTICECLINICS IN JURISDICTION, NCOMPLETED SURVEYS,* NRESPONSE RATE, %
    OntarioFamily health team1855429
    Community health centre1082321
    Nurse practitioner–led clinic252080
    Aboriginal health access centre10550
    Total328102*31
    Eastern QuebecLocal community health service centre (centre local de services communautaires)501326
    Family medicine group (groupe de médecine familiale)551527
    Family medicine unit (unité de médecine familiale)121192
    Total1173933
    • ↵* Partially completed surveys were excluded.

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    Table 2.

    Types of palliative care services provided by responding clinics

    SERVICE OFFEREDONTARIO (N = 102), N (%)EASTERN QUEBEC (N = 39), N (%)
    Care for ambulatory patients with progressive illness85 (83)29 (74)
    Home visits to provide end-of-life care for patients80 (78)36 (92)
    Care coverage provided outside of regular office hours54 (53)24 (62)
    Advance care planning78 (76)26 (67)
    Grief and bereavement support68 (67)9 (23)
    Care for patients in long-term care facilities43 (42)20 (51)
    Care for patients in residential hospices18 (18)22 (56)
    Care for patients in palliative care units16 (16)16 (41)
    • View popup
    Table 3.

    Clinics’ access to and use of palliative care resources and services

    PALLIATIVE CARE RESOURCES AND SERVICESONTARIO (N = 102)EASTERN QUEBEC (N = 39)*
    HAVE ACCESS TO, N (%)ACTUALLY USE, N (%)HAVE ACCESS TO, N (%)ACTUALLY USE, N (%)
    CCAC palliative care case management and contracted nursing services91 (89)88 (86)NANA
    Palliative care consultation team in community68 (67)65 (64)13 (41)12 (38)
    CCAC palliative care nurse practitioners55 (54)43 (42)NANA
    Palliative care physicians (take over care as most responsible physician)57 (56)45 (44)12 (39)12 (39)
    Residential hospice for patients at end of life49 (48)39 (38)22 (69)19 (59)
    Community hospice programs (day hospice, hospice at home)42 (41)35 (34)20 (63)18 (56)
    Palliative care unit (for complex cases across the illness trajectory)43 (42)34 (33)17 (57)17 (57)
    • CCAC—community care access centre, NA—not applicable.

    • ↵* Only 32 of the 39 Quebec clinics answered these questions.

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Canadian Family Physician: 65 (2)
Canadian Family Physician
Vol. 65, Issue 2
1 Feb 2019
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Do family health clinics provide primary-level palliative care in Ontario and the eastern regions of Quebec?
Bruno Gagnon, Sandy Buchman, Anum Irfan Khan, Marnie MacKinnon, Sara Urowitz, Tara Walton, Marie Immacula Fabienne Cléophat-Jolicoeur, José Pereira
Canadian Family Physician Feb 2019, 65 (2) 118-124;

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Do family health clinics provide primary-level palliative care in Ontario and the eastern regions of Quebec?
Bruno Gagnon, Sandy Buchman, Anum Irfan Khan, Marnie MacKinnon, Sara Urowitz, Tara Walton, Marie Immacula Fabienne Cléophat-Jolicoeur, José Pereira
Canadian Family Physician Feb 2019, 65 (2) 118-124;
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