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Research ArticleProgram Description

Implementation of Health Links coordinated care plans for adults with intellectual and developmental disabilities

Cross-sectoral pilot program

Mary I. Martin, Elizabeth Grier, Nicole Bobbette, Ian Casson, Janet Durbin, Meg Gemmill, Yona Lunsky and Hélène Ouellette-Kuntz
Canadian Family Physician April 2019; 65 (Suppl 1) S41-S46;
Mary I. Martin
Research Associate in the Department of Family Medicine at Queen’s University in Kingston, Ont.
MSc
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Elizabeth Grier
Assistant Professor in the Department of Family Medicine at Queen’s University.
MD CCFP
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Nicole Bobbette
Occupational therapist in the Department of Family Medicine at Queen’s University.
MSc OT Reg (Ont)
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Ian Casson
Associate Professor in the Department of Family Medicine at Queen’s University.
MD MSc CCFP FCFP
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Janet Durbin
Scientist with the Centre for Addiction and Mental Health’s Performance Measurement and Evaluation Program in Toronto, Ont.
PhD
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Meg Gemmill
Assistant Professor and Director of the Intellectual and Developmental Disabilities Program in the Department of Family Medicine at Queen’s University.
MD CCFP
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  • For correspondence: meg.gemmill{at}dfm.queensu.ca
Yona Lunsky
Directs the Azrieli Adult Neurodevelopmental Centre at the Centre for Addiction and Mental Health and is Professor in the Department of Psychiatry at the University of Toronto.
PhD CPsych
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Hélène Ouellette-Kuntz
Epidemiologist and Professor in the Department of Public Health Sciences and with ICES at Queen’s University.
PhD
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Article Figures & Data

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    Figure 1.

    Health Links CCP for Adults with IDD and Complex Needs

    CCP—coordinated care plan, CSPC—Centre for Studies in Primary Care, ED—emergency department, HDH—Hotel Dieu Hospital, HL—Health Links, HLCC—Health Links Care Coordinator, HSREB—Health Sciences Research Ethics Board, IDD—intellectual and developmental disabilities, KGH—Kingston General Hospital, LC—Laura Cassidy, LHIN—Local Health Integration Network, LRB—Linda Robb-Blenderman, P—physician, PC—primary care, P&P—Pressures and Priorities Committee, RN—registered nurse, RU—Richelle Uens, SE—south east, SECCAC—South East Community Care Access Centre, SELHIN—South East Local Health Integration Network, SHIIP—South East Health Integrated Information Portal.

Tables

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    Table 1.

    Participant characteristics: N=9.

    CHARACTERISTICVALUES
    Sex, n
      • Female7
      • Male2
    Age, n
      • 21–30 y3
      • 31–40 y3
      • 41–50 y2
      • > 50 y1
    Age range, y21–62
    Living arrangement, n
      • Lives with family6
      • Lives in group home1
      • Lives in long-term care1
      • Unstable housing1
    Substitute decision maker
      • Yes (parent)6
      • Yes (cousin)1
      • No2
    No. of individuals or organizations that are part of care team, range5–23
    Brief Family Distress Scale score
      • Range3.5–9
      • No. of scores ≥ 6*3
    No. of physical health issues identified, range5–12
    No. of mental health issues identified, range0–2
    No. of social health issues identified, range0–2
    • ↵* A score of ≥ 6 indicates that the family is approaching or is currently in crisis.

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Canadian Family Physician: 65 (Suppl 1)
Canadian Family Physician
Vol. 65, Issue Suppl 1
1 Apr 2019
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Implementation of Health Links coordinated care plans for adults with intellectual and developmental disabilities
Mary I. Martin, Elizabeth Grier, Nicole Bobbette, Ian Casson, Janet Durbin, Meg Gemmill, Yona Lunsky, Hélène Ouellette-Kuntz
Canadian Family Physician Apr 2019, 65 (Suppl 1) S41-S46;

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Implementation of Health Links coordinated care plans for adults with intellectual and developmental disabilities
Mary I. Martin, Elizabeth Grier, Nicole Bobbette, Ian Casson, Janet Durbin, Meg Gemmill, Yona Lunsky, Hélène Ouellette-Kuntz
Canadian Family Physician Apr 2019, 65 (Suppl 1) S41-S46;
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