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Research ArticleResearch

Involvement of palliative care in patients requesting medical assistance in dying

Camille Munro, Anna Romanova, Colleen Webber, Michael Kekewich, Rayelle Richard and Peter Tanuseputro
Canadian Family Physician November 2020, 66 (11) 833-842;
Camille Munro
Palliative medicine physician in the Division of Palliative Medicine in the Department of Medicine at the University of Ottawa and The Ottawa Hospital in Ontario.
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  • For correspondence: camunro@toh.ca
Anna Romanova
General internal medicine physician in the Division of Internal Medicine, in the Department of Medicine at the University of Ottawa and The Ottawa Hospital in Ontario.
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Colleen Webber
Clinical Research Associate at The Ottawa Hospital Research Institute.
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Michael Kekewich
Director of Ethics and the MAID program at The Ottawa Hospital.
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Rayelle Richard
Nurse consultant with the Supportive and Palliative Care Team at The Ottawa Hospital.
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Peter Tanuseputro
Scientist in the Clinical Epidemiology Program at The Ottawa Hospital Research Institute and Assistant Professor in the Division of Palliative Care in the Department of Medicine at the University of Ottawa.
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    Figure 1.

    Primary diagnosis of patients who requested MAID

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    Figure 2.

    Medical assistance in dying process and timeline

Tables

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    Table 1.

    Characteristics of patients who requested, completed, or did not complete MAID at The Ottawa Hospital in Ontario

    PATIENT CHARACTERISTICSPATIENTS WHO REQUESTED MAID (N = 84)PATIENTS WHO COMPLETED MAID (N = 50)PATIENTS WHO DID NOT COMPLETE MAID (N = 34)P VALUE
    Mean (SD) age68.7 (15.2)69.4 (14.2)67.7 (16.6).61
    Sex, n (%)
    • Male46 (54.8)30 (60.0)16 (47.0).24
    • Female38 (45.2)20 (40.0)18 (53.0) 
    Neighbourhood, n (%)
    • Urban77 (91.7)43 (86.0)34 (100.0).02
    • Rural7 (8.3)7 (14.0)0 (0.0) 
    Marital status, n (%)
    • Married or common law52 (61.9)33 (66.0)19 (55.9).49
    • Single*29 (34.5)16 (32.0)13 (38.2) 
    • Unknown3 (3.6)1 (2.0)2 (5.9) 
    Religious, n (%)
    • Yes29 (34.5)18 (36.0)11 (35.3).62
    • No46 (54.8)28 (56.0)18 (52.9) 
    • Unknown9 (10.7)4 (8.0)5 (14.7) 
    Place of residence, n (%)
    • Home with family43 (51.2)30 (60.0)13 (38.2).06
    • Home alone14 (16.7)7 (14.0)7 (20.6) 
    • Retirement home12 (14.3)7 (14.0)5 (14.7) 
    • Nursing home9 (10.7)4 (8.0)5 (14.7) 
    • Other hospital2 (2.4)2 (4.0)0 (0.0) 
    • Unknown4 (4.8)0 (0.0)4 (11.8) 
    Has family physician, n (%)78 (92.8)47 (94.0)31 (91.2).68
    Family physician provides palliative care, n (%)
    • Yes24 (28.6)12 (24.0)12 (35.3).06
    • No30 (35.7)23 (46.0)7 (20.6) 
    • Unknown30 (35.7)15 (30.0)15 (44.1) 
    Regional palliative care provider available, n (%)76 (90.5)46 (92.0)30 (88.2).71
    • MAID—medical assistance in dying.

    • ↵* Includes widowed and divorced individuals.

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    Table 2.

    Details of MAID process

    MAID VARIABLESPATIENTS WHO REQUESTED MAID, N (%) (N = 84)PATIENTS WHO COMPLETED MAID, N (%) (N =50)PATIENTS WHO DID NOT COMPLETE MAID, N (%) (N = 34)P VALUE
    No. of reasons for MAID request
    • 19 (10.7)5 (10.0)4 (11.8).01
    • 2 or more67 (79.8)44 (88.0)23 (67.6) 
    • Unknown8(9.5)1 (2.0)7 (20.6) 
    Reasons for MAID request
    • Physical suffering65 (77.4)42 (84.0)23 (67.6).08
    • Psychological suffering8(9.5)6 (12.0)2 (5.9).46
    • Poor quality of life23 (27.4)15 (30.0)8 (23.5).51
    • Loss of autonomy31 (36.9)19 (38.0)12 (35.3).8
    • Fear of dying1 (1.2)1 (2.0)0 (0.0)> .99
    • Loss of dignity3 (3.6)2 (4.0)1 (2.9)> .99
    ESAS completed   .23
    • Yes20 (23.8)13 (26.0)7 (20.6) 
    • No57 (67.9)35 (70.0)22 (64.7) 
    • Unknown7 (8.3)2 (4.0)5 (14.7) 
    Patient had previous MAID request   .07
    • Yes3 (3.6)1 (2.0)2 (5.9) 
    • No78 (92.9)49 (98.0)29 (85.3) 
    • Unknown3 (3.6)0 (0.0)3 (8.8) 
    MAID assessment location*
    • Inpatient23 (28.8)13 (26.0)10 (33.3).24
    • Outpatient55 (68.8)37 (74.0)18 (60.0) 
    • Unknown2 (2.5)0 (0.0)2 (6.7) 
    • ESAS—Edmonton Symptom Assessment Scale, MAID—medical assistance in dying.

    • ↵* Four patients passed away before first assessment.

    • View popup
    Table 3.

    Palliative care involvement in patients who requested, completed, or did not complete MAID

    CHARACTERISTICPATIENTS WHO REQUESTED MAID, N (%)PATIENTS WHO COMPLETED MAID, N (%)PATIENTS WHO DID NOT COMPLETE MAID, N (%)P VALUE
    Previous contact with community PC physician (n = 84)   .71
    • Yes23 (27.4)15 (30.0)8 (23.5) 
    • No55 (65.5)31 (62.0)24 (70.6) 
    • Unknown6 (7.1)4 (8.0)2 (5.9) 
    Involvement of PC before MAID request in any setting (n = 84)   .69
    • Yes50 (59.5)30 (60.0)20 (58.8) 
    • No33 (39.3)19 (38.0)14 (41.2) 
    • Unknown1 (1.2)1 (2.0)0 (0.0) 
    Offered PC after MAID request (n = 84)   .26
    • Yes39 (46.4)22 (44.0)17 (50.0) 
    • No39 (46.4)26 (52.0)13 (38.2) 
    • Unknown6 (7.1)2 (4.0)4 (11.8) 
    Offered PC after MAID request among patients with previous PC involvement (n = 50)   .14
    • Yes19 (38.0)9 (30.0)10 (50.0) 
    • No26 (52.0)19 (63.3)7 (35.0) 
    • Unknown5 (10.0)2 (6.7)3 (15.0) 
    Offered PC after MAID request among patients with no or unknown previous PC involvement (n = 34)   .39
    • Yes20 (58.8)13 (65.0)7 (50.0) 
    • No13 (38.2)7 (35.0)6 (42.8) 
    • Unknown1 (2.9)0 (0.0)1 (7.1) 
    Involvement of TOH PC before and after MAID request (n = 84)   .32
    • Yes39 (46.4)21 (42.0)18 (52.9) 
    • No45 (53.6)29 (58.0)16 (47.1) 
    Involvement of TOH PC among patients with outpatient MAID request (n = 55)*   .79
    • Yes17 (30.9)11 (29.7)6 (33.3) 
    • No38 (69.1)26 (70.3)12 (66.7) 
    Timing of TOH PC involvement among patients with outpatient MAID assessments (n = 17)   .21
    • Before MAID request14 (82.4)10 (90.9)4 (66.7) 
    • After MAID request3 (17.6)1 (9.1)2 (33.3) 
    Involvement of TOH PC among patients with inpatient MAID assessments (n = 23)*   .86
    • Yes18 (78.3)10 (76.9)8 (80.0) 
    • No5 (21.7)3 (23.1)2 (20.0) 
    Timing of TOH PC involvement among patients with inpatient MAID assessments (n = 18)   .62
    • Before MAID request15 (83.3)9 (90.0)6 (75.0) 
    • After MAID request3 (16.7)1 (10.0)2 (25.0) 
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Canadian Family Physician: 66 (11)
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Involvement of palliative care in patients requesting medical assistance in dying
Camille Munro, Anna Romanova, Colleen Webber, Michael Kekewich, Rayelle Richard, Peter Tanuseputro
Canadian Family Physician Nov 2020, 66 (11) 833-842;

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Camille Munro, Anna Romanova, Colleen Webber, Michael Kekewich, Rayelle Richard, Peter Tanuseputro
Canadian Family Physician Nov 2020, 66 (11) 833-842;
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