Consent forms used by patient assistance programs raise privacy concerns

Healthcare Project Manager with British Columbia’s Expensive Drugs for Rare Diseases program in Vancouver and is trained extensively in patient PHI privacy. Works for the Provincial Health Services Authority in Vancouver.

Clinical Professor in the Division of Endocrinology at the University of British Columbia in Vancouver, is Medical Lead for the Expensive Drugs for Rare Diseases program, and is focused on health policy as it applies to rare diseases. Works for the Provincial Health Services Authority in Vancouver.