Respondents’ core beliefs and practices
| QUESTION | FAMILY PHYSICIANS (N = 249), N (%) | PEDIATRICIANS (N = 211), N (%) | MIDWIVES (N = 250), N (%) | TOTAL (N = 710), N (%) |
|---|---|---|---|---|
| Core beliefs | ||||
| Before screening results are available | ||||
| • Feel responsible for providing care to families who receive positive newborn screening results | ||||
| - Agree | 168 (67.4) | 171 (81.0) | 179 (71.6) | 518 (73.0) |
| - Neutral | 43 (17.3) | 9 (4.3) | 20 (8.0) | 72 (10.1) |
| - Disagree | 17 (6.8) | 5 (2.4) | 35 (14.0) | 57 (8.0) |
| - Missing | 21 (8.4) | 26 (12.3) | 16 (6.4) | 63 (8.9) |
| Once positive screening results are available | ||||
| • Should provide brochures to parents about a condition identified through newborn screening | ||||
| - Agree | 160 (64.2) | 154 (73.0) | 187 (74.8) | 501 (70.6) |
| - Neutral | 33 (13.2) | 31 (14.7) | 21 (8.4) | 85 (12.0) |
| - Disagree | 48 (19.3) | 21 (10.0) | 34 (13.6) | 103 (14.5) |
| - Missing | 8 (3.2) | 3 (1.4) | 8 (3.2) | 19 (2.7) |
| • Should have a general discussion with parents about a condition identified through newborn screening | ||||
| - Agree | 183 (73.5) | 179 (84.8) | 206 (82.4) | 568 (80.0) |
| - Neutral | 23 (9.2) | 17 (8.1) | 12 (4.8) | 52 (7.3) |
| - Disagree | 35 (14.0) | 12 (5.7) | 23 (9.2) | 70 (9.8) |
| - Missing | 8 (3.2) | 3 (1.4) | 9 (3.6) | 20 (2.8) |
| • Should have a detailed discussion with parents about a condition identified through newborn screening | ||||
| - Agree | 60 (24.1) | 142 (67.3) | 69 (27.6) | 271 (38.2) |
| - Neutral | 45 (18.1) | 33 (15.6) | 23 (9.2) | 101 (14.2) |
| - Disagree | 137 (55.0) | 32 (15.2) | 150 (60.0) | 319 (44.9) |
| - Missing | 7 (2.8) | 4 (1.9) | 8 (3.2) | 19 (2.7) |
| Actual practices | ||||
| Once positive screening results are available | ||||
| • Provide brochures to parents about a condition identified through newborn screening | ||||
| - Consistently or usually | 38 (15.3) | 55 (26.1) | 82 (32.8) | 175 (24.6) |
| - Sometimes | 20 (8.0) | 47 (22.3) | 17 (6.8) | 84 (11.8) |
| - Rarely or never | 175 (70.3) | 105 (49.8) | 141 (56.4) | 421 (59.8) |
| - Missing | 16 (6.4) | 4 (1.9) | 10 (4.0) | 30 (4.2) |
| • Have a general discussion with parents about a condition identified through newborn screening | ||||
| - Consistently or usually | 69 (27.7) | 117 (55.4) | 116 (46.4) | 302 (42.5) |
| - Sometimes | 25 (10.0) | 36 (17.1) | 10 (4.0) | 71 (10.0) |
| - Rarely or never | 137 (55.0) | 55 (26.1) | 115 (46.0) | 307 (43.2) |
| - Missing | 16 (6.4) | 3 (1.4) | 9 (3.6) | 28 (3.9) |
| • Have a detailed discussion with parents about a condition identified through newborn screening | ||||
| - Consistently or usually | 39 (15.7) | 108 (51.2) | 60 (24.0) | 207 (29.2) |
| - Sometimes | 28 (11.2) | 36 (17.1) | 25 (10.0) | 89 (12.5) |
| - Rarely or never | 165 (66.3) | 64 (30.3) | 156 (62.4) | 385 (54.2) |
| - Missing | 17 (6.8) | 3 (1.4) | 9 (3.6) | 29 (4.1) |