Participant characteristics: N=9.
| CHARACTERISTIC | VALUES |
|---|---|
| Sex, n | |
| • Female | 7 |
| • Male | 2 |
| Age, n | |
| • 21–30 y | 3 |
| • 31–40 y | 3 |
| • 41–50 y | 2 |
| • > 50 y | 1 |
| Age range, y | 21–62 |
| Living arrangement, n | |
| • Lives with family | 6 |
| • Lives in group home | 1 |
| • Lives in long-term care | 1 |
| • Unstable housing | 1 |
| Substitute decision maker | |
| • Yes (parent) | 6 |
| • Yes (cousin) | 1 |
| • No | 2 |
| No. of individuals or organizations that are part of care team, range | 5–23 |
| Brief Family Distress Scale score | |
| • Range | 3.5–9 |
| • No. of scores ≥ 6* | 3 |
| No. of physical health issues identified, range | 5–12 |
| No. of mental health issues identified, range | 0–2 |
| No. of social health issues identified, range | 0–2 |
↵* A score of ≥ 6 indicates that the family is approaching or is currently in crisis.