Table 5.

Factors associated with PCP notification of parents of children with positive CF NBS results among those contacted by NSO

FACTORADJUSTED RR (95% CI)
Beliefs
Beliefs about PCP role in NBS
  • Important role in general (agree vs disagree)1.31 (1.00-1.71)*
  • Important role in notification (agree vs disagree)1.25 (0.83-1.88)
Confidence
Confident making the notification
  • Extremely or very confident vs not very or not at all confident1.26 (0.76-2.09)
  • Moderately confident vs not very or not at all confident1.05 (0.61-1.79)
Preparedness
Point-of-care information received
  • Verbal communication with treatment centre vs both written and verbal0.96 (0.86-1.08)
  • Written information vs both written and verbal0.79 (0.69-0.92)
Practice-based exposure to …
  • CF (yes vs no)1.11 (0.98-1.26)
  • CF carrier (yes vs no)0.95 (0.84-1.08)
  • NBS results positive for CF (yes vs no)1.01 (0.87-1.18)
  • NBS results positive for another disorder (yes vs no)1.03 (0.89-1.20)
Relationship with family
Existing relationship with family (yes vs no)0.87 (0.73-1.04)
Caring for infant since birth (yes vs no)1.06 (0.75-1.50)
Perceived barriers
Practice-related barriers to notify within 1 d
  • Extremely or very significant vs not very or not at all significant1.11 (0.91-1.36)
  • Moderately significant vs not very or not at all significant1.07 (0.91-1.24)
Practice-related barriers to notify within 3 d
  • Extremely or very significant vs not very or not at all significant0.97 (0.71-1.31)
  • Moderately significant vs not very or not at all significant0.86 (0.68-1.09)
PCP characteristics
Practice type (solo vs group)0.96 (0.80-1.16)
Practice location (urban vs rural)0.97 (0.85-1.09)
Years in practice (0-15 vs ≥ 16)1.07 (0.93-1.22)
Sex (female vs male)1.07 (0.93-1.22)
Provider type
  • Family physician vs midwife1.04 (0.85-1.27)
  • Pediatrician vs midwife0.96 (0.73-1.26)
  • CF—cystic fibrosis, NBS—newborn screening, NSO—Newborn Screening Ontario, PCP—primary care practitioner, RR—risk ratio.

  • *P < .05.

  • P < .01.