Primary care providers’ perspectives on their role in caring for children who have positive screening results for CF
| ROLES | TOTAL n (%), N = 321* | FAMILY PHYSICIANS n (%), N = 208* | PEDIATRICIANS n (%), N = 68* | MIDWIVES n (%), N = 45* | P VALUE† |
|---|---|---|---|---|---|
| What role would you have in providing routine WBC for ... | |||||
| Infants confirmed to have CF | < .001 | ||||
| • Provide total WBC | 73 (23.0) | 35 (17.0) | 37 (54.4) | 1 (2.3) | |
| • Share WBC with specialist or subspecialist | 216 (68.1) | 152 (73.8) | 30 (44.1) | 34 (79.1) | |
| • Refer WBC to specialist or subspecialist | 28 (8.8) | 19 (9.2) | 1 (1.5) | 8 (18.6) | |
| Infants with an inconclusive diagnosis of CF | < .001 | ||||
| • Provide total WBC | 158 (49.5) | 102 (49.5) | 46 (67.6) | 10 (22.2) | |
| • Share WBC with specialist or subspecialist | 144 (45.1) | 99 (48.1) | 21 (30.9) | 24 (53.3) | |
| • Refer WBC to specialist or subspecialist | 17 (5.3) | 5 (2.4) | 1 (1.5) | 11 (24.4) | |
| Infants who are CF carriers | < .001 | ||||
| • Provide total WBC | 284 (89.3) | 196 (94.7) | 61 (92.4) | 27 (60.0) | |
| • Share WBC with specialist or subspecialist | 27 (8.5) | 11 (5.3) | 1 (1.5) | 15 (33.3) | |
| • Refer WBC to specialist or subspecialist | 7 (2.2) | 0 (0.0) | 4 (6.1) | 3 (6.7) | |
| What role would you have in providing care for minor acute illnesses for ... | |||||
| Infants confirmed to have CF | < .001 | ||||
| • Provide total care for minor acute illnesses | 171 (53.6) | 112 (54.1) | 57 (85.1) | 2 (4.4) | |
| • Share care for minor illnesses with specialist or subspecialist | 113 (35.4) | 84 (40.6) | 10 (14.9) | 19 (42.2) | |
| • Refer care for minor illnesses to specialist or subspecialist | 35 (11.0) | 11 (5.3) | 0 (0.0) | 24 (53.3) | |
| Infants with an inconclusive diagnosis of CF | < .001 | ||||
| • Provide total care for minor acute illnesses | 214 (67.1) | 154 (74.4) | 58 (86.6) | 2 (4.4) | |
| • Share care for minor illnesses with specialist or subspecialist | 84 (26.3) | 53 (25.6) | 9 (13.4) | 22 (48.9) | |
| • Refer care for minor illnesses to specialist or subspecialist | 21 (6.6) | 0 (0.0) | 0 (0.0) | 21 (46.7) | |
| Infants who are CF carriers | < .001 | ||||
| • Provide total care for minor illnesses | 265 (83.6) | 200 (96.6) | 61 (93.8) | 4 (8.9) | |
| • Share care for minor illnesses with specialist or subspecialist | 36 (11.4) | 7 (3.4) | 1 (1.5) | 28 (62.2) | |
| • Refer care for minor illnesses to specialist or subspecialist | 16 (5.0) | 0 (0.0) | 3 (4.6) | 13 (28.9) | |